Located in Boston and the surrounding communities, Dana-Farber Cancer Institute brings together world renowned clinicians, innovative researchers and dedicated professionals, allies in the common mission of conquering cancer, HIV/AIDS and related diseases. Combining extremely talented people with the best technologies in a genuinely positive environment, we provide compassionate and comprehensive care to patients of all ages; we conduct research that advances treatment; we educate tomorrow's physician/researchers; we reach out to underserved members of our community; and we work with amazing partners, including other Harvard Medical School-affiliated hospitals.
Dana-Farber Cancer Institute (DFCI) launched the Patient Reported Data (PRD) Program in 2018 to govern appropriate content, implementation and analysis of PRD. PRD is defined as “any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the patient’s response by a clinician or anyone else.” There is growing evidence supporting the use of PRD to improve processes of care and health services outcomes. Leveraging established survival benefits of direct patient report, we have begun to implement electronic collection of PRD at clinic visits across DFCI, increasing collection rates from <10% (patient portal) to nearly 70% for new patients bypassing barriers of low patient portal enrollment (<40%) or lack of computer access (20%). This is a significant initiative within DFCI, requiring coordination across multiple clinical, operations and research departments, as well as Partners HealthCare Information Systems.
The Research Data Specialist will assist with the ongoing implementation and evaluation of quality improvement and innovation projects within the PRD program. The Research Data Specialist must be self-directed with exceptional problem-solving skills.
PRIMARY DUTIES AND RESPONSIBILITIES:
1.As directed, meet/make contact with patients/families/staff/faculty eligible to participate in the PRD program, including all required follow ups, at the main campus and satellite sites, and document all interactions in the program database. Related tasks may include:
2.Work with the PRD program manager to
MINIMUM JOB QUALIFICATIONS:
Dana-Farber Cancer Institute is an equal opportunity employer and affirms the right of every qualified applicant to receive consideration for employment without regard to race, color, religion, sex, gender identity or expression, national origin, sexual orientation, genetic information, disability, age, ancestry, military service, protected veteran status, or other groups as protected by law.