• Research Data Specialist

    Location US-MA-Boston
    Job Posted Date 3 weeks ago(9/25/2019 9:08 AM)
    Job ID
    Clinical Research
    part time
  • Overview

    Located in Boston and the surrounding communities, Dana-Farber Cancer Institute brings together world renowned clinicians, innovative researchers and dedicated professionals, allies in the common mission of conquering cancer, HIV/AIDS and related diseases. Combining extremely talented people with the best technologies in a genuinely positive environment, we provide compassionate and comprehensive care to patients of all ages; we conduct research that advances treatment; we educate tomorrow's physician/researchers; we reach out to underserved members of our community; and we work with amazing partners, including other Harvard Medical School-affiliated hospitals.


    Dana-Farber Cancer Institute (DFCI) launched the Patient Reported Data (PRD) Program in 2018 to govern appropriate content, implementation and analysis of PRD. PRD is defined as “any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the patient’s response by a clinician or anyone else.” There is growing evidence supporting the use of PRD to improve processes of care and health services outcomes. Leveraging established survival benefits of direct patient report, we have begun to implement electronic collection of PRD at clinic visits across DFCI, increasing collection rates from <10% (patient portal) to nearly 70% for new patients bypassing barriers of low patient portal enrollment (<40%) or lack of computer access (20%). This is a significant initiative within DFCI, requiring coordination across multiple clinical, operations and research departments, as well as Partners HealthCare Information Systems.


    The Research Data Specialist will assist with the ongoing implementation and evaluation of quality improvement and innovation projects within the PRD program. The Research Data Specialist must be self-directed with exceptional problem-solving skills.




    1.As directed, meet/make contact with patients/families/staff/faculty eligible to participate in the PRD program, including all required follow ups, at the main campus and satellite sites, and document all interactions in the program database. Related tasks may include:

      • Meet patients in person or via phone, depending on clinic location, and provide and review program materials and services
      • Maintain databases (including data entry) and project documentation with accuracy, as needed.
      • Maintain the security and confidentiality of all study materials and data. 
      • Assist with writing and editing materials for patients/families/staff/faculty and facilitate distribution of materials
      • Assist with documentation for and communication with institutional review board.
      • Conduct relevant literature searches and reviews as requested.
      • Assist team in the coordination of project-related activities (ie. surveys/interviews) at internal or external (on-site & off-site) study sites.
      • Assist with coordination and preparation of project related meetings as requested and may be responsible for meeting minutes.
      • Manage and help plan the education opportunities and outreach to patients/families/staff/faculty including participant-centered webinars, telephone support groups, newsletters, an bi-annual digital health forum in concert with other DFCI, Brigham and Women’s Hospital and other Partners Healthcare programs, and other programs in development

    2.Work with the PRD program manager to

      • maintain the PRD program databases, which holds all information related to services provided for the PRD participants
      • Identify opportunities for quality improvement
      • Propose solutions and address/solve issues that occur.



      • BA/BS required.  Advanced degree in public health or administration a plus. 
      • Must have prior health education, clinical research, or clinical patient experience and data management experience. 
      • Informatics experience preferred.
      • Must have excellent written and verbal communication and interpersonal skills. 
      • Ability to relate effectively in-person and on the telephone to diverse groups of patients, community members, physicians, nurses, researchers, children and parents.
      • Must be able to communicate with patients and staff effectively, with sensitivity. 
      • Strong organizational skills and ability to work independently required. 
      • Position requires ability to use computers frequently and to use multiple programs including Microsoft Office Suite, Electronic Medical Records, and Project Management tools. 
      • Previous experience with Access, Tableau and other research administration software programs is preferred. 

    Dana-Farber Cancer Institute is an equal opportunity employer and affirms the right of every qualified applicant to receive consideration for employment without regard to race, color, religion, sex, gender identity or expression, national origin, sexual orientation, genetic information, disability, age, ancestry, military service, protected veteran status, or other groups as protected by law.


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